It's been awhile

Wow! It's been over 3 months since I last posted on this blog for Hudson.

So much has changed since the last post. Hudson is becoming more and more able to understand when he talkes and he's so good at repeating you. He loves to practise his words and even when your done he wants "more". He has started trying to say two words at a time now which is great and he's starting to not drop his last constant. I'm very happy we decided to keep going to Weyburn for speech, although it would have been so great for him to be in preschool. It just wasn't the time yet for him. We will revisit that next year. Chances are he will go into preschool at the school next year. 

Hudson started going to daycare more. He got a part time spot which was great. It's so good for him. Will really help him socially and hopefully he will learn to talk with the kids there too! 

We are very busy between going to Weyburn every other week, ECIP coming on our off weeks. It's good for him and very good to have the consistency. 

Decisions are hard

So again, it's been along time since I posted. 

We've been weighing in the pros and cons since our daycare & preschool meeting. We have decided not to enroll Hudson into preschool in the fall. Although he would have a SLP come to the school, he just has too much of a bond with our current SLP. I just don't want a setback to happen with him getting used to a new person. Our SLP is doing so good with him right now, and making amazing progress.

Hudson is getting so good. We can understand him for the most part and he can at least tell us what he needs. 

We take Hudson to Physio & Occupational Therapy as well when we go to Weyburn. They've been practicing his jumping, standing on one foot, stairs for PT and for OT practicing colouring, threading beads, using scissors. Anything that involves his fine motor skills. OT told us at our last appointment that that she doesn't need to see him for awhile. So that is good news!! They told us we would also loose them if Hudson was put in preschool. It's just too bad we loose our services with our Health Region and can't do both. But that's ok. He is still young and maybe too little for preschool anyways. 

On a happy note, Hudson has been offered a part time spot at daycare, which is fantastic news! It will help his socialization, which was a big reason we wanted him in preschool. Being with his peers will be a big thing for him. I'm actually very excited about it. He starts July as part time 😊

Well that's all for now. I'm posting a picture of our family picture in our shirts I had made for Apraxia awareness day. 

They turned out awesome!!! 

Busy life

We are still tossing up the thought of Hudson going to preschool or not. We are thinking of maybe holding off for a year and continue with our SLP in Weyburn for another year and revisit the idea again in the spring. He's still little and doing so well with our SLP. We really hate to loose her, as much as the drive does suck. We will have to see. I think we are scheduling a meeting at the end of May, first part of June to make the final decision. 

He did fantastic at speech last week. Think it was the best session we've had! I've downloaded a new app for the iPad that our SLP told me about. I am excited to start this week. Just been very busy working me week of 5 nights. 

He is smart, so I'm sure he will catch on fast. We are creating a PECS binder for him to use for his communication. Just need to take more pictures and have them sent to our SLP. Job #2 for the week! 

I had to sleep all day through Mother's Day. However I did get Hudson to say Happy Mommy Day. He did fantastic! 

I would never imagined that a year ago he would be able to say it. He does need to work on it, but it will come. Last year he was only ever saying BA 

To me, It's amazing!! 

This coming Saturday May 14th is Apraxia Awareness. Even Though Hudson has never been technically diagnosed, his reports show a great chance. We had shirts made that say he has severe speech delay since he doesn't have the diagnosis yet. 

We had a local lady in town make shirts for us, his sister Quinn and for him. 

Excited to see them this week! 

Tough Decisions

We've had lots going on. Hudson had some assessments done at speech these last couple weeks. He's starting to learn his vowels which our SLP said is really good for him to start to increase his speech. 

We had a meeting today which included the lady in charge of daycare, our ECIP lady, our school principal and a pre k coordinator to discuss hudsons needs when planning on enrolling him into pre k. 

They have applied for a grant to have him come to daycare 1-2 times a week and have someone there to be with Hudson. 

Pre K is changing this fall also. The daycare currently runs preschool and they get funding through the school district. In the fall, the plan is to have the school run the pre K. Everything is just in the works currently. The only disadvantage is that if we enroll Hudson in, he would be enrolled through the ministry of education, which results in him loosing his SLP services through our health region. He would have to start seeing a SLP through the school. We were informed that the SLP's are there every other day which was very reassuring as well that they are very good. It's just going to be a really hard decision. We will have been with our current SLP for a year this May. We really like her, as does Hudson. It would just be very beneficial for Hudson to attend pre k.

We have a very hard decision to make in this next month 😕

The picture I posted tonight is from a couple of days ago when Hudson and I spent most of the morning playing with his "speech" toys while Quinn was at school. 

Our life

I So it has been a very long time since I have written anything. Don't think anyone follows my blog anyway. 

It's been 4-5 months now since I sent our letter to our MLA regarding Hudson's speech services with the lack of funding. I never heard back. 

I saw on Facebook I'm the last week or so a lady from Ontario created a petition online because her daughter is in a similar situation. 

It's so heartbreaking hearing these stories. Our children sit here and suffer through this and we as parents feel helpless that we can't do anything about it. 

We have been going to speech therapy every other week now. Instead of doing it every week for 10 weeks and then 10 weeks of a break. This way we have continuous speech therapy. On the off weeks we have ECIP come to our house. 

Currently both our SLP & ECIP are working with PECS. Which is using pictures as a different form of communication. They've found kids who use this program have great success. Here's hoping he continues to speak more and more. He has caught on so much on this. This past week when we went to our SLP appointment he immediately grabbed the binder she uses for his pecs. He's definitely learning. Last week our SLP suggested asking occupational therapist about him possibly having apraxia through his fine motor skills. We see OT and PT the beginning of May. 

It's so hard going to see all these therapists. I'm so happy having our SLP. She is absolutely amazing. Hudson loves her and has a very good connection with her. The one day after our appointment he ran up to her and gave her a hug and kiss and said "bye" before we left. It's amazing to see the bond he has. And he looks forward to his sessions with her.

We have recently seen Physio regarding his walking, running, jumping, standing on one foot, doing buttons, ect. She did an assessment about a month ago and he failed almost all the activities. It's so heartbreaking seeing him suffer and not be the same as kids his age. We have our next appointment the beginning of May. Occupational Therapy wants to see him that day as well. It's wonderful getting the services. It's just hard. Part of me wants to just say no. I want to believe he doesn't need to see them. It's just so unbelievably hard. Because I know he needs to be seen and it's for the best. I just wish he was a normal boy. Wish we were having normal conversations with him, not worrying anout him falling down stairs, not worrying about him having any kind of gross motor skill challenges. 

I have been reading a lot about children with Apraxia of speech (CAS) and it's still a learning process. I find myself wondering very often about of future and what's it's going to be like. I wonder if he will still be struggling with his speech when he's 10 years old, 15 years old or even struggle as an adult and have this worry for the rest of his life. I often wonder if he will ever get married? Have children. Will Apraxia affect him forever? 

We are in the process of getting him into preschool. Would be great for his socialization to be with kids that will someday hopefully be his friends and classmates. I'm happy for this to get rolling, but I'm so scared too. What if they pick on him because he is different and not like them? Do kids that young bully their friends? Often makes me wonder. I was picked on almost all through school. I don't know why I was picked on. Just was never accepted as a "cool" kid I guess. Maybe I wasn't outgoing or because I was shy. Hudson is just like me. He is so shy. I just hope he will be accepted and not have to worry about being picked on like I was. 

I've just been feeling so many emotions lately. Like a Rollercoaster. Feels like my heart breaks piece by piece every week when I sit and think about our life and his. 

Just so hard. I hope he will outgrow this. But I think hoping for that to happen should be more like a dreaming 💔

On the other hand I should be happy it's only this. There are worse things that he could have. So should be thankful for that!!

We will fight and fight for this! 

I've joined some apraxia Facebook pages. A couple of Canadian ones and one not Canadian. Can't believe how many families are going through this. One of those things you never know about. Wish that there was more awareness. I found out tonight that Apraxia Awareness day is May 14th. I want to get shirts made for this day. We will be wearing our blue shirts! 

I saw Calgary has a Apraxia Summer Camp. Something I thought was neat. There are walks too that raise awareness but the closest ones are B.C and Ontario. None in Saskatchewan. I thought it would be nice to connect with some Canadian families going through the same thing. Even Saskatchewan would be wonderful. 

I am posting a picture from Hudson's 3rd birthday. He had a minion party. He says mimian 😍

This is all I have to write for now. I will try and update more often. 

Working to get to goals

It's been awhile since I've made a post. Things are kind of the same. Nothing new has really happened. I never ever heard back from the MLA about the letter I sent. Thought I would at least get a letter back. Guess I shouldn't be surprised. 

We are currently working with Hudson with sensory. He seems to not like playing in sand at speech therapy. He will however play in rice at home. So something to work on.

Hudson had a Physio appointment this week regarding his walking, running and jumping. Gave us some handouts of different activities to do with him. They want to see him again in 6 weeks. 

Thanks for following, that's all I have for now.